I know I haven't blogged in a while, I have sat down to do it but I just have so many things going through my head that I cant put them all down on a blog. When I kept up with it daily it was much easier. I could put down my thoughts for the day and it was therapeutic, I miss blogging I just cant find the words. I am going to try to go back to the daily blog, so for those of you who still check I will try to do better.
Lets see where do I begin, I will start with G, we have had 2 ECI appts now, I guess they are going ok, but I am still not happy with the whole process. They seem to be focused on his eating, which is good. But he has other issues, he is now having horrible temper tantrums, yes part of it is his age but not all of it. He has had a few panic attacks when we have been in a crowded place, like the grocery store. One day we were in the grocery store, and it was really busy it was loud and busy. He got really agitated, he held his head and started to cry "I want to go home mommy", "I want to go home mommy". I felt so bad for him, he was beside himself. This happened again yesterday when we went to drop L off at dance it was crowded a small room and it was loud, he was again beside himself, he was crying and covering his ears. He was really disturbed by the whole thing. He doesn't like the noise of airplanes, and living by an air force base, this is hard to avoid. He loves to look up and find the plane but he hates the noise. He is scared and covers his ears and comes running when he hears them. And he hears them way before I ever do. He must have the hearing of a dog, because he will cry airplane mommy a full 10 seconds before I ever hear it. I am at a loss for how to help him and this ECI program is doing him no good for these issues.
On a good note I did get him an appointment for the Pediatric G.I., and the Pediatric Allergist in Dallas next month. Of course I couldn't get them on the same day so we will stay the night in Dallas, but at least they are on consecutive days, so I don't have to drive all the way back and go back again. So we will see how that goes. I will keep you posted.
H is doing well in school, she brought a progress report home from school today, and she got all A's and one B. I was so proud of her. She is loving dance and looks forward each week to doing it. I am so glad we started them in dance. She is still having some attitude issues, and I hope we can those worked out. But I think she act like a 7 year old girl. I think the attitude goes along with that.
L is doing well, she still isn't going to school yet. I have a new one to go check out in the hopes that she can get in. Wish us luck. Today our neighbor took her to Chuck E. Cheese, and she had a great time. She was sad that it wasn't her birthday today so she could get a crown. LOL
We had two casualties in our house today, both of our hamsters died. I was going to clean the cage and I couldn't wake them up. When our neighbor(the one who gave us the hamsters), came to drop L off I told her I thought they were dead, she came in and opened up the cage and yes they were dead. So she took them home with her. I debated on telling the kids that they had died, it was suggested that I tell them they got out of the cage and ran away. But in the end I decided not to lie to them, I told them the truth. H was very upset, she couldn't believe that her poor Cocoa had died. Our neighbor has offered to give them another one and I asked them and they want one. So I beached the cage all out tonight and we will get another tomorrow. I am just baffled by the fact that both died on the same day. How does that happen? What did I do wrong? I cleaned the cage twice a week, I fed them, they had water. So how did they die? I feel like a horrible pet owner. But I guess we are going to try again.
Well I guess that is the update for tonight. Till next time remember to hug and kiss your family and tell them you love them, today is gone and tomorrow may never come..........
1 comment:
I recommend reading the Out of Sync Child. It's a great resource when you have a Sensory child. All of those hearing issues point towards Auditory Defensive. Wes has a little bit and I've found that carrying around headphones and an MP3 player with all his favorite music helps. We play it low so he focuses on the music but can still hear a bit of the background noise. This way he can become accustomed to it without it hurting him.
I really suggest you talk with G's therapists. Ask them what their plan is for him and then let them know you're concerns and what you'd like them to work on alongside the other issues. Maybe you can find a Sensory based Occupational Therapist who can help G as well. They can certainly help with the Auditory sensitivities.
Good luck.
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